5 years of EDS
On this day five years ago I got a diagnosis of Ehlers-Danlos Syndrome. After a decade spent navigating increasingly confusing symptoms that never seemed to fit together, I thought that getting an answer would be the start of my life changing for the better. Now that I knew what was wrong with me, we would be able to figure out a treatment plan, get all my symptoms under control, and I would be free to go out and start my life with no limitations just like any other 20-year-o
Dec 106 min read
I met my younger self for coffee today
She was 10 minutes late, and I was 15. She told me she wasn’t expecting anyone to show up. She asked me to order her a flat white, and I...
Feb 182 min read
An Inspiration
“You inspire me every day!” What does it mean to be an inspiration? Am I an inspiration because I am still here? Am I an inspiration...
Jan 4, 20222 min read
Depression (a triolet)
The world is dark but still, it spins, and there's a creature on my back crushing my chest and the wounds on my leg hold a comfortable...
Aug 12, 20211 min read
